MARC School of Business organized a session on hemophilia on 11th March 2014. Vishal, Member of Hemophilia Society, Bangalore, was the guest speaker. A young and inspiring hemophilic boy who is pursuing MCA gave an energetic presentation. This session consisted symptoms, basic care treatment and intensive treatment for Hemophilia.
What will you do, if you had a cut on your finger? In reality we don’t have to worry much about it. But, the irony is that this can be fatal for a hemophilic person. Hemophilia is a genetic disorder that impairs the body’s ability to control blood clotting or coagulation. It can be due to heredity or gene mutations. Hemophilia occurs much more in males than females. Mostly females remain as asymptotic carriers.
Hemophilia A & Hemophilia B are the most commonly occurring (due to mutations in the F8 and F9 genes of the X-chromosome(s)) conditions. This condition lowers the level of blood plasma clotting factors needed for a normal clotting process, the missing coagulation factors prevent the synthesis of fibrin, which is necessary to maintain the blood clot. On the basis of severity, hemophilia can be classified as mild moderate and severe. The treatment also goes in the same order & is very expensive and is not affordable by Indian middle class families.
Apart from physiological conditions, hemophilics also suffer from social stigma (mainly in rural areas). Therefore, the individual also suffers from psychological stress. Our government is not much interested in welfare of hemophilics. Our government is also not willing invest in R&D and to manufacture the medicines in our country. But, many NGOs are trying to get the government’s attention regarding this serious issue.
It was an info session conducted by MARC School of Business in hands with Hemophilia Society, Bangalore, to create awareness about Hemophilia and its effects.
ARTICLE BY: ARSHAD RAWTHAR
SUPPORTED BY: MEDIA RANGERS (STUDENT MEDIA TEAM AT MARC)